Help for Families of Children with Special Health Care Needs

Seneca County Health Department's Children with Special Health Care Needs Program can assist Families, with children ages birth to 21 years, in gaining information and access to services in such areas as:

chronic illnesses and disability support advocacy health care financing (also Child Health Plus)

LENDING LIBRARY

• Living with a Brother or Sister with Special Needs
  A book, which focuses on the intensity of emotions that brothers and sisters experience with special needs and offers suggestions how to make life easier.
• Uncommon Fathers
  Reflections on Raising a Child with a Disability.
• Peter's Story
  This personal recollection of a parent with a special needs child was written as a letter to another mother.
• Lee, the Rabbit with Epilepsy
  This story follows Lee from her first seizure to the doctor's office and then home with the new medication to control her seizures
• We'll Paint the Octopus Red
  A reassuring story for young children as well as parents adjusting to Down Syndrome and what it means for their relations with their sibling or child. Helpful questions and answers for children about Down Syndrome.
• SPINAbilities
  Written for teenagers and young adults. Focuses on four broad topics: health and personal care; relationships, responsibilities of growing up and wellness. From bowel and bladder care to relationships with family friends and from academic and career planning to fitness and exercise.
• Views from our Shoes
  Essays from boys and girls in age range from 4 to 18. They share their experiences as the brother or sister of someone with a disability.
• Children with Visual Impairments
  For families of children with visual impairments ranging from low vision to total blindness. This book offers authoritative information and empathetic parental insight on diagnosis and treatment, family adjustment, orientation, and mobility, literacy, legal issues and more.
• My Brother Matthew
  Offers sibling’s point of view of the ups and downs of life when sibling is born with a disability.
• Shelly the Hyperactive Turtle
  Shelley has a hard time sitting still, he then leans from the Doctor that he is hyperactive and that he can take medicine every day to control his wiggly feeling.
• Rolling Along with Goldilocks and the Thee Bears
  Picture book is an adaptation of the classic folktale retold with a special needs twist.
• Russ and the Almost Perfect Day
  Russ makes a difficult decision to give back the money he found or buy ice cream for a friend. Deals with special needs child so positively integrated in a school setting.
• Children with Cerebral Palsy
  A complete spectrum of information and advice about cerebral palsy and its effect on development and education during a child's first six years.
• Children with Spina Bifida
  Provides with up-to-date information and empowering emotional support.
• From the Heart
  Nine mothers explore the intense, sometimes painful, emotional terrain of raising children with special needs.
• Enhancing Quality
  Standard and Indicator of Quality Care for Children with Special Health Care Needs.
• Coordinating Care from Clinic to Community
  Quality Standards for Serving Children and Families Affected by Environmental Lead Hazards.
• Shared Responsibilities
  Ensuring Quality managed Care for Children with Special Health Care Needs.
• Assessing the Quality of Managed Care for Child with Special Health Care Needs
  (New England SERVE)
• Paying the Bills
  Tips for families on Financing Health Care for Children with Special Needs.

For more information or to utilize our Lending Library...
Please Contact:

Rose Mary Barto
Children with Special Health Care Needs Program Coordinator

The Seneca County Health Dept.
31 Thurber Drive Suite 1
Waterloo, NY 13165

Phone: 315-539-1938
E-mail: health@co.seneca.ny.us